1. It’s important to:

• include people with disability
• support people with disability to be part of decisions that affect them.

The disability community should help to decide how people use the data asset.

When people do research, they should include:

• people with disability
• their families and carers.

2. It’s important to:

• share what people find
• let everyone see how things work.

People should share information they find with the community.

And the information should be accessible.

When information is accessible, it is easy to:

• find and use
• understand.

3. It’s important to be responsible for how people use the data asset.

This includes having ways to check that everyone only uses the data asset for the right reasons.

This includes:

• researchers

• governments.

And there should be people who don’t work for the data asset who check that people follow these principles.

4. It’s important to keep data private and safe.

This includes following all the laws about keeping information safe and private.

We will take people’s information out of the data, like their name.

This means no one will know who the data is about.

5. It’s important to control who can use the data asset.

This will make sure people only use the data for the right reasons.

And if they don’t, then we can stop them from using the data asset.

6. It’s important to share what the research finds.

All research projects that use the data asset must share key parts of what they find with the community.

7. It’s important to make a difference for all people with disability.

The data asset will be fair.

And it will focus on making outcomes better for all people with disability.

Outcomes are important results we want for people with disability.

The data asset will also focus on outcomes for certain groups of people with disability.

And it will create more evidence for decisions to support people with disability.

Evidence is proof that something is true.

8. It’s important to make sure:

• people can find and use the data quickly

• people can use the data to test what they find

• the data is good quality.

We will make sure people can find and use the data quickly once they are allowed to.

Governments will work together to:

• make sure the data is good quality
• share how they learn from the data asset.